If I only had a heart.........
Well, what a difference a week makes. On the way home tonight I was thinking hard how I would start this entry off, and on came Everybody Hurts by R.E.M, and the line take comfort in your friends has never rung so true as now........
Ellie is back in Intensive Care. We had our weekly cardiologist meeting and he was unhappy with the way the valve on her left side of her heart is performing, and so she needs to have heart surgery next Tuesday afternoon. They are basically going to replace the valve with another one of her own. The one she has the difficulties with is the one that provides blood to her body, and they are going to move the one that provides blood to her lungs. Once they have done that they are going to put a mechanical valve to replace the one they have moved - make sense?
So all those years ago when I played the Tin Man who needed a heart in the Wizard of Oz and now my daughter needs a heart, I truly wish I could give her mine. Once again she is filled with tubes to help her breathe and to eat, and they are trying to bulk her up at the moment so that she will be strong for the op.
I tried to think of the best title I could, and originally this was going to be called Hanging on in quiet desperation is the English way, but I am in California now and have a positive can do attitude. Also Arnie had the same op and look at him - Governor of California (oh and breaker of leg whilst ski-ing, so not the best example). I was also going to call this Take a chance on me, because of the risk factor involved in the op. The surgeon has warned us that there is a 10-20% risk factor - which is surgeon speak for death. Wow what a great name for an indie band "Surgeon Speak for Death".
Speaking of band names the machine that Elena is hooked up to is made by Masimo, I just hope that Jackson did not make the machine on his 4 track at home.
Thank you all to everyone who has provided kind thoughts and well wishes, we are looking forward to meeting up with you and laughing about how Ellie gave me grey hairs (she doesn't need to know I had then pre her).
It has also put my other news on the back burner and that is after 3 months in my current job I have been given a promotion. I now give out the biscuits and the tea in the meetings now!!!!
Ellie is back in Intensive Care. We had our weekly cardiologist meeting and he was unhappy with the way the valve on her left side of her heart is performing, and so she needs to have heart surgery next Tuesday afternoon. They are basically going to replace the valve with another one of her own. The one she has the difficulties with is the one that provides blood to her body, and they are going to move the one that provides blood to her lungs. Once they have done that they are going to put a mechanical valve to replace the one they have moved - make sense?
So all those years ago when I played the Tin Man who needed a heart in the Wizard of Oz and now my daughter needs a heart, I truly wish I could give her mine. Once again she is filled with tubes to help her breathe and to eat, and they are trying to bulk her up at the moment so that she will be strong for the op.
I tried to think of the best title I could, and originally this was going to be called Hanging on in quiet desperation is the English way, but I am in California now and have a positive can do attitude. Also Arnie had the same op and look at him - Governor of California (oh and breaker of leg whilst ski-ing, so not the best example). I was also going to call this Take a chance on me, because of the risk factor involved in the op. The surgeon has warned us that there is a 10-20% risk factor - which is surgeon speak for death. Wow what a great name for an indie band "Surgeon Speak for Death".
Speaking of band names the machine that Elena is hooked up to is made by Masimo, I just hope that Jackson did not make the machine on his 4 track at home.
Thank you all to everyone who has provided kind thoughts and well wishes, we are looking forward to meeting up with you and laughing about how Ellie gave me grey hairs (she doesn't need to know I had then pre her).
It has also put my other news on the back burner and that is after 3 months in my current job I have been given a promotion. I now give out the biscuits and the tea in the meetings now!!!!
posted by Nick at 9:07 PM
2 Comments:
Nick
I have just read this latest entry and want to pass on both my and Jude's best wishes to you all. We hope that all goes well with Ellie's op next week and we will be keeping our fingers and toes crossed for you all.
I found reading your latest entry quite weird as "Everybody Hurts" was the first song that came on the radio nearly 14 years ago after my sister "left"!
Love to you all
Nick
Nick, Jen - just caught up with your blog, which was such a shock after last week's promising news. Will be thinking of you all and especially Ellie with very much love and sending over lots of wishes for a rapid recovery. Hugs to all the family. xxx Amanda
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